Extended half-life products for children with hemophilia B reduce both bleeding episodes and the need for infusions, ...
Columnist Jennifer Lynne attended 10 bleeding disorders conferences in 2025, and has some ideas about improving representation for women.
Columnist Joe MacDonald says his mind often feels like a dangerous neighborhood, but the support of others guides him back to safety.
Testing is essential when confirming a hemophilia diagnosis. The process includes a physical exam and blood-clotting factor ...
MacDonald enjoyed the snow during a recent trip to Taos, New Mexico, but it also brought back some tough memories.
The new EnzySystem device for hemophilia A could make home clotting tests easier, but patients and caregivers say its ...
Safety is important, but for people with hemophilia, avoiding any risk can feel like missing out on life, says columnist.
Parents of children with hemophilia, especially mothers, often experience deep guilt linked to the genetic nature of the ...
Columnist Jennifer Lynne says that, while living with hemophilia, spontaneous soft-tissue bleeds can occur without warning and rattle her.
Columnist Joe MacDonald knew giving in to fear wouldn't help his son's hemophilia pain, so he developed ways to distract him and stay calm.
Whether with quilting or hemophilia care, sometimes it's necessary to learn lessons the hard way, writes columnist.
For guest writer Jared Formalejo, balancing parenting, relationships, and medical care is all part of learning how to live ...
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